Action on Pain

Providing support and advice for people affected by chronic pain.
Telephone: 0345 6031593 (10am to 4pm Monday to Friday)

APS Support UK

Our mission is to save and improve the lives of patients with antiphospholipid syndrome by achieving earlier diagnosis and the best possible treatment. 

Telephone: 0300 323 9943

info@aps-support.org.uk

Arthritis Action

Arthritis Action gives members access to physical therapies in their local area, alongside exercise, healthy eating, weight management advice and individual support. We run self-management events around the country and are setting up local support groups for members. 

Telephone: 020 3781 7120

info@arthritisaction.org.uk

BackCare

BackCare is a national charity that aims to reduce the impact of back pain on society by providing information, support, promoting good practice and funding research. BackCare acts as a hub between patients, (healthcare) professionals, employers, policy makers, researchers and all others with an interest in back pain.

Helpline: 0845 130 2704

info@backcare.org.uk

CRPS UK Clinical & Research Network 

The CRPS UK Clinical & Research Network is a collaboration between a number of UK NHS trusts and academic institutions with an interest in Complex Regional Pain Syndrome.  

Telephone: 01225 473479

Ehlers Danlos Support UK

The organisation produces literature, DVDs and merchandise to increase the understanding in managing this condition and supplies education and resources for the medical community and funds research. 

Telephone: 0208 736 5604

Email: Contact form

Fibromyalgia Action UK

Fibromyalgia Action UK aiming to improve the knowledge and availability of treatment options.

Helpline: 0844 887 2444

Friends Through Pain

A social group for men and women who suffer from chronic pain. Meetings are held on the last Thursday of every month at Stubbington Baptist Church.

President and founder, Brenda Hadfield: 02392 524220

brendahadfield@btinternet.com  

Hypermobility Syndrome Association

The HMSA aims to provide support and information to those affected by the Syndrome and to promote knowledge and understanding within the medical community and the public at large.

Helpline: 033 3011 6388

Email: Contact Form

IPRS


This website is for people interested in or suffering from Palindromic Rheumatism. 

LUPUS UK

LUPUS UK supports people with systemic lupus and discoid lupus and assisting those approaching diagnosis. 

Telephone: 01708 731251

headoffice@lupusuk.org.uk

Lyme Disease Action

We are a charity dealing with Lyme disease throughout the UK. 

 

Myositis UK

Myositis UK is a charity providing advice and support to individuals and their families affected by Dermatomyositis, Polymyositis, Inclusion Body Myositis and Juvenile Dermatomyositis.

msg@myositis.org.uk

NASS 

NASS provide support, advice and information to people with AS.

The Paget's Association

The Paget's Association is a national UK charity providing information and support to all those affected by Paget’s Disease of Bone. The Association funds quality research, raises awareness and supports professionals to achieve excellence in care and research.

The Paget's Association, Suite 5, Moorfield House Moorside Road Swinton Manchester M27 0EW 

Tel: 0161 799 4646

Pain Concern

Pain Concern is a charity working to support and inform people with pain and those who care for them, whether family, friends or healthcare professionals.

Telephone: 0300 102 0162

info@painconcern.org.uk

Pain UK 

Pain UK is an alliance of charities providing a voice for people in pain. 

info@painuk.org 

Partners Through Pain 

Support group that meets on the last Wednesday of each month in the Parish Hall at Christ Church in Stoke Road, Gosport.  

Phone: 07933040680 

Email: johnfaulkner25.jf@gmail.com 

Polymyalgia Rheumatica & Giant Cell Arteritis UK

Polymyalgia Rheumatica & Giant Cell Arteritis UK (PMRGCAuk) is a registered charity established to meet the needs of people with these debilitating conditions by offering support, raising awareness and promoting research. 

Helpline: 0300 111 5090

info@pmrgcauk.com

RSI Action

The charity  facilitates the relief of sickness, hardship and distress amongst those suffering within the UK from RSI conditions.

info@rsiaction.org.uk

Scleroderma & Raynaud’s UK 

Scleroderma and Raynaud’s UK iis dedicated to improving the lives of people affected by Scleroderma and Raynaud’s. 

Telephone: 020 7000 1925

info@sruk.co.uk

The National Rheumatoid Arthritis Society

The National Rheumatoid Arthritis Society supports people affected by Rheumatoid Arthritis (RA).

Helpline: 0800 298 7650

helpline@nras.org.uk

The Psoriasis and Psoriatic Arthritis Alliance (PAPAA)

The Psoriasis and Psoriatic Arthritis Alliance (PAPAA) is a UK registered charity dedicated to providing a positive approach for people affected by psoriasis and psoriatic arthritis.

Telephone: 01923 672837  (Enquiry line open 9:30am - 4:30pm weekdays - Recorded message operates out of hours)

info@papaa.org

The Behçet’s Syndrome Society

The society provide information and support for people with Behçet’s disease and for those who care for them, financial aid, promote research and form patient support groups.

Helpline - 0345 130 7329

info@behcetsdisease.org.uk

The British Sjögren's Syndrome Association (BSSA)

The British Sjögren's Syndrome Association is dedicated to providing mutual support and information to individuals affected by this disabling disease

Helpline - 0121 478 1133 (9.30am – 4.00pm Monday to Wednesday and 9.30am - 8.00pm Thursday and Friday.)

The Brittle Bone Society

The Brittle Bone Society is the national charity that supports individuals and families affected by Osteogenesis Imperfecta (OI). We’re here to help and support you and your loved ones

Telephone - 01382 204446

 bbs@brittlebone.org


UK Gout Society

The UK Gout Society charity, supports sufferers and provides information about the causes, treatment and prevention of gout.

info@ukgoutsociety.org

UK Fibromyalgia

Email Address:info@ukfibromyalgia.com

Versus Arthritis

You don’t need to face arthritis alone. Our advisors aim to bring all of the information and advice about arthritis into one place to provide tailored support for you.

Call us for free* today (Monday–Friday, 9am–6pm).

The helpline is closed from 12.00 pm the last Friday of every month for training.

Please note that our advisors aren’t medically trained and aren’t able to offer you individual medical advice. Find out more about our helpline.

Calls to our 0800 5200 520 number are free when calling from within the UK but charges will apply when calling from abroad. For more information you will need to contact your network provider.